Levi James, today you are one!! You are strong and brave. Your first year was a mighty big fight to keep you alive, but you’re here and we will keep fighting for you every day.
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You are an overcomer, a fierce little lion, a joyful boy who smiles at anyone who will look your way. Watching the bond between you & your sisters grow this year has made us so happy.
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Here’s to a better year, hey buddy. We love you Levi. Happy birthday sweet boy.
Though she be but little, she is fierce.
On December 3rd 2018, our beautiful Lily was formally diagnosed with dwarfism. After two years of working with her medical team for answers regarding her slow growth & other difficulties, it wasn’t a shock to us; but rather confirmation of the concerns we had. .
Lily has come so far in the past two years, she has a cheeky & vibrant personality, she loves her siblings & she faces the physical challenges she has with gusto.
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What this means, realistically, is that she likely won't ever be taller than 4 feet, and will have some different proportions than those around her.
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If you need to refer to Lily’s short stature, the term we prefer to use is “little person” or that “Lily has dwarfism”. We ask that you never use the term “‘midget” since it’s derogatory & offensive to those who are short statured.
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What an adventure our girl has been on, we can’t wait to see where this life takes her. *sasha is quietly researching adaptive surfing programs & the Paralympics, whilst Steve is working out how we can get her past the height limits on rollercoasters.
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If you have any questions, please feel free to contact either of us; but be patient as we are also learning.
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