This beautiful mess

It’s been a really long time since I sat down to write anything, let alone a blog post. The past eight or so months have been one heck of a ride. If you follow me on social media, you would know by now that in August last year we gave birth to a little girl named Lily. Her arrival was quite different to Sophie’s in that she was born a month early due to her not doing so great on the inside. *There is a post about Lily’s arrival that I wrote a while back, but it was set to private until recently. I’ll post the link here

Last week Lily had surgery to repair the laryngomalcia airway defect that has been giving her so much trouble with breathing & feeding. So far I’m trying to stay optimistic but unfortunately we haven’t seen the sudden improvement that we had hoped for in terms of her willingness to eat or drink. I am hopeful that with time, & after a change to some of her treating team, we may be able to get some progress happening. We have agreed to give sleep school a go in the next week to see whether some rest & a better routine will help push her growth along, provide some relief to her current general miserable disposition & also get some eating happening.

Im learning that this is a marathon, not a sprint; & regardless of all of our well thought out plans & intentions we cannot force progress upon Lily that she isn’t ready for.

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